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Meetings with the Office of Orphan Products Development: Guidance for Industry, Researchers, Patient Groups, and Food and Drug Administration Staff

FinalOffice of the Commissioner,Office of Clinical Policy and Programs,Office of Orphan Products Development07/09/2015

Description

This guidance provides recommendations to industry, researchers, patient groups, and other stakeholders (collectively referred to in this guidance as “stakeholders”) interested in requesting a meeting, including a teleconference, with the Food and Drug Administration’s (FDA’s) Office of Orphan Products Development (OOPD) on issues related to orphan-drug designation requests, humanitarian use device (HUD) designation requests, rare pediatric disease designation requests, funding opportunities through the Orphan Products Grants Program and the Pediatric Device Consortia Grants Program, and orphan product1 patient-related topics of concern. It is also intended to assist OOPD staff in addressing such meeting requests. This guidance describes procedures for requesting, preparing, scheduling, conducting, and documenting such meetings.

Scope & Applicability

Product Classes

1
Orphan product

Includes drugs, devices, biological products, or medical foods for rare diseases.

Stakeholders

5
Applicant

Entity submitting development data and knowledge; Entity performing the work process for change

Sponsor

Entity responsible for submitting applications under section 524B

Patient Groups

Stakeholders interested in requesting meetings with OOPD.

Researchers

Researchers are responsible for aligning QC and QA procedures with data holders.

Industry

Guidance for Industry

Regulatory Context

Attributes

4
15 working days

Timeframe to submit written IND after emergency authorization

Orphan Subset

Valid orphan subset for pediatric subpopulations

Incidence

A metric used in calculating population estimates for designations.

Prevalence

Estimated number of people with a disease, used to determine clinical investigation enrollment.

See Also (8)

Meetings with the Office of Orphan Products Development: Guidance for Industry, Researchers, Patient Groups, and Food and Drug Administration Staff | Guideline Explorer | BioRegHub